Put your art where your heart is

Posted on Apr 11, 2013 in blog, National Marfan Foundation, Sculpture | 2 Comments

As a direct result of information disseminated by the National Marfan Foundation, I was able to diagnose myself with the condition. This information saved my life.LoveNestWeb

Marfan Syndrome is a genetic disorder of the connective tissue. People with Marfan Syndrome tend to be unusually tall, with long limbs and long, thin fingers. Because connective tissue is found throughout the body, Marfan Syndrome has a range of symptoms and affects individuals differently. The most serious complications are defects of the heart valves and aorta.

After convincing my doctor that I had the condition, I was given an echo cardiogram and was diagnosed with an enlarged aorta. I had preventative surgery to repair my aorta and replace my aortic valve. My mother was not so lucky. She was too old to have the surgery by the time she was diagnosed. She passed away from an aortic dissection in 2011.

Each year, the National Marfan Foundation has a HeARTworks Gala with an an auction to raise money for research and education about the condition. So far, I have contributed three heart sculptures for the event. This year, “The Love Nest” is one of three chosen for the auction. Starting bid, $500.

Check out the auction booklet here.


  1. Mark Glasberg
    Apr 12, 2013

    Dear Sarah
    We have been going to the NMF Gala for 3 years and started collecting hearts. This year we acquired the heart that you made and I must say it is the most beautiful one in our collection
    3 Years ago my yougest daughter Abigail ( 11yo) was diagnosed with marfan syndrome and we are blessed to have found the NMF organization. Thankyou for your donation it is the highlight of our collection

    Mark & Emily Glasberg

    • admin
      Apr 12, 2013

      Dear Mark and Emily,

      Thank you so much for your kind words. Nothing could make me happier than knowing that, in some small way, my art could make a difference. I wish you and Abigail all the best. With your love and support, Abigail has a long and healthy life ahead of her.



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